About eYPAGnet

The European Young Persons Advisory Group Network (eYPAGnet) is a consortium of experts who facilitate meaningful Patient and Public Involvement with children, young people, and families across Europe. eYPAGnet is renowned for setting up and working with children and young people through the forum of Young People’s Advisory Groups (YPAGs) across Europe. It was founded by the following groups:  GenerationR (Liverpool, England). Kids Barcelona, Kids France, and ScotCRN (Scotland).

Barcelona YPAG

eYPAGnet provides a single, centralised point of contact for:

  • Sponsors (both industry and academics) who want advice from children and young people either via YPAGs or the creation of disease-specific young patient and/or family groups.
  • A collaboration of YPAGs with the relevant working parties of the European Medicines Agency (EMA) including the European Network of Paediatric Research networks (EnprEMA) and the Paediatric Committee (PDCO), 
  • European Initiatives including Conect4Children and Paediatric Clinical Research Infrastructure Network (PEDCRIN

eYPAGnet also provides support in the training of CYP and coordinators of YPAG’s to ensure a high standard of understanding of patient and public involvement, clinical trial design, ethics and research methodology.

The European Young Person’s Advisory Group Network (eYPAGnet) provides a platform for children and young people to have a voice across Europe, share their opinions, and apply their experience to a variety of issues in clinical trials, such as relevant endpoints, protocol design, formulations, age-appropriate information, and patient tools.

The majority of YPAGs include young people aged between 8-19 years (although some groups have older young adults up to the age of 23) who are patients, regular attenders at the hospital, and/or have an interest in science, healthcare, and children’s rights. YPAGs are predominantly facilitated by a professional involved in a clinical research facility, children’s hospital, or academic institution.

eYPAGnet provides a centralised point of contact and creates a platform in which investigators can access the opinions of children and young people in a manner that is regulated with standard contracts, confidentiality agreements, agreed payments for services, and services that are ethically sound.

The goals of eYPAGnet are:

A YPAG doing a learning activity
  • To improve the capacity of collaboration between children, young people, and stakeholders who participate in the research process and development of innovative drugs. 
  • To promote the planning and development of clinical research initiatives for children at a European level. 
  • To unify the curriculum of training programs for children, young people, and facilitators of YPAGs. 
  • To promote and support the creation of new groups. 
  • To empower children and young people to have a voice in Europe that is valued.